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16P Genetic Syndrome Foundation
Our mission is to treat and integrate 16p11.2 Genetic Variances seamlessly throughout the health, education and societal landscapes by 2030. We do it for our children.
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Organization Overview
IRVINE, CA 92603-3533
Grants Received by Year
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About the Organization
- Organization category
- Public Charity
- Mission
- Our mission is to treat and integrate 16p11.2 Genetic Variances seamlessly throughout the health, education and societal landscapes by 2030. We do it for our children.
- Programs or services
- Convene/Connect
Foster millions affected by 16p11.2 variations to come together for education, support and care regularly.
Drive Better Care
Create Center of Excellence clinics that will not only develop and implement clinical care practices, but also serve to train other physicians.
Advance Research
Connect patients with research from basic science to clinical trials of effective medications and multi-gene therapy. Conduct our own research.
Advocate for Policy
Designated ICD code. Work with policy makers and industry to promote education and understanding of 16p11.2 variations to ease the acquisition of proper care and education for those affected. - Target Audience
- Convene/Connect
Foster millions affected by 16p11.2 variations to come together for education, support and care regularly.
Drive Better Care
Create Center of Excellence clinics that will not only develop and implement clinical care practices, but also serve to train other physicians.
Advance Research
Connect patients with research from basic science to clinical trials of effective medications and multi-gene therapy. Conduct our own research.
Advocate for Policy
Designated ICD code. Work with policy makers and industry to promote education and understanding of 16p11.2 variations to ease the acquisition of proper care and education for those affected. - Geographic Focus
- Nationwide